I was instantly attracted to this project because it was so visually striking and different. The huge problem with sarcoidosis is that it is a very complex condition with multiple versions, types and outcomes.

Sarcoidosis is so hard to explain in a way that is understandable. This website and book cuts through this entirely and reveals aspects of the condition in a new and visual way. A global way. People all over the world have sarcoidosis, yet still so little is understood and so few people know about it unless they sadly get a diagnosis. 

We really hope that in some small way this project represents the global challenge that needs to be undertaken for there to be better care (and better treatments) for sarcoidosis patients. Too many websites underplay the seriousness of sarcoidosis. Too many suggest that most patients have acute sarcoidosis, and sadly it just isn't true. So few websites mention recurrent sarcoidosis which is a major outcome in roughly a third of patients (along with the more known acute or chronic). Then there is the confusion that this is an autoimmune disease when it is actually defined as an inflammation disease where lumps (clusters of cells called granulomas) develop in different organs and stop them working properly. 

For anyone with sarcoidosis help is available and I strongly urge you to join a support group - there are some fantastic ones online including SarcoidosisUK Facebook Group. It is so vital we become our own advocate because so often the support isn't forthcoming. There are some amazing specialists for sarcoidosis, but the level of care is patchy. It is vital we - and our families - get the best care possible to help us to have the best possible outcome.